The flat streets and predictably hot climate of Dubai don’t align with what runners experience in the Boston Marathon, but that doesn’t deter Marjan Faraidooni from training in her home city, Dubai, 7,800 miles away from Boston.
A public health graduate of Boston University (BU), Marjan knows the terrain of the marathon route and understands the unpredictability of New England weather. But what really helps her focus on training for the famously tough race is that she is running this year’s marathon with a mission — to raise awareness for autism and support for Mass General’s Lurie Center for Autism.
Marjan saw the life-altering impact that a child with autism spectrum disorder (ASD) has on a family …
Marjan, 40, is running on behalf of Hamza Dahlan, the seven-year-old son of her friend, Malik Dahlan, a Harvard University graduate she met while attending BU two decades ago. Marjan saw the life-altering impact that a child with autism spectrum disorder (ASD) has on a family, and the challenges that parents, like Malik and his wife, Sarah, face in securing appropriate resources. She also felt it was important for every “inclusive society” to understand the special qualities of individuals like Hamza and to support them and their families as they work to ensure that they have access to opportunities and support in their communities.
Marjan decided to run for Mass General’s Lurie Center knowing how important it is to Malik, Sarah and Hamza and the nearly 3,000 other families who rely on their expert care.
Advocate for Autism Awareness
Malik and Sarah feel fortunate to have Marjan as a champion for autism awareness and Hamza, and to have the Lurie Center as their family’s guardian angel.
Autism is viewed as a taboo in the Middle East, according to Sarah. “Considering that, we’re fortunate Marjan wants to help,” she says. “She’s one of the most influential women in the Middle East. For her to help drive awareness there for autism is amazing.”
Indeed, the online news service Arabian Business last year named Marjan as one of the “50 most influential women in the Arab World.” After earning a bachelor’s degree in physiology and a master’s in public health at Boston University, she returned home to the United Arab Emirates in 2001 to work as an instructor at a college and then held various strategy positions in healthcare and finance.
Five years ago, Marjan landed a key role in her country’s hosting of a world expo. As senior vice president of legacy development for Expo 2020 Dubai, she helps ensure that investments in infrastructure and redevelopment of the Expo site create lasting economic and social benefits for the city.
Having already run six marathons, including New York in 2014 and London in 2015, Marjan didn’t hesitate when Malik and Sarah offered her the opportunity to raise funds for the Lurie Center through a charity entry to the Boston Marathon.
With determination, she enjoys training for the Boston Marathon to relieve the stress of work, and hopes her efforts will raise awareness of autism in Dubai. “I just want to help the center and my friends’ child, Hamza. I also want people to understand that families that have been touched by autism have many challenges to deal with, including the very difficult one of social insensitivities. I believe the first step in helping families is putting in an effort to understand what it entails. A little bit of understanding and compassion can go a long way and will pave the way for a truly inclusive society.”
Relying on Philanthropy
The Lurie Center for Autism relies on philanthropy to provide multidisciplinary care, an expensive endeavor for which insurers cover less than 50 percent of the costs. The Center’s evaluation and treatment plans combine the perspectives of physicians, psychologists and nurses, along with those of educational and behavioral consultants, speech-language pathologists and physical and occupational therapists.
Hamza went from not responding to his name to now speaking, reading, writing and attending a mainstream school.
After years of research, Sarah credits this multidisciplinary approach with properly diagnosing children and then putting into action comprehensive treatment and intervention. Hamza went from not responding to his name to now speaking, reading, writing and attending a mainstream school.
There’s nothing like a Lurie Center in England or the Gulf for that matter, Sarah says. That’s why she and Malik have started the Autism Center of Excellence in the U.K., a transatlantic partnership with the Lurie Center and Mass General. The new center’s aim is to replicate the Lurie Center’s commitment to care: a multidisciplinary approach for the patient and extensive support for families that includes connections with local charities. “It’s a big task for parents to pick up the pieces and treat their children,” she says. “We’re not experts at the end of the day.”
The center is about “halfway” to opening, Sarah says, and has benefited from occasional visits from Mass General researcher Nicole Zurcher Wimmer, PhD, who is a “Hamza Scholar” thanks to the generous support of the family.
Please consider supporting 2019 Boston Marathon runner Marjan Faraidooni.
For more information about how you can donate to the Lurie Center for Autism, please contact us.
John Hancock-Mass General Marathon Partnership is Powerful Source of Support
John Hancock’s partnership with the Mass General Marathon Program continues to be a strong and unwavering source of key funding for hospital programs. For 22 years, John Hancock has provided Mass General runners with invitational entries for the Boston Marathon®, as well as an opportunity to fundraise on behalf of the hospital.
Mass General’s Pediatric Cancer Team has raised more than $14.4 million since it was formed in 1998. Funds raised by this team – the hospital’s longest running — support research and child-life activities for children with cancer.
In 2014, the Mass General Marathon Program expanded when awarded 40 additional entries to create the Emergency Response Team. These entries recognized the lifesaving response of hospital employees following the 2013 Boston Marathon® bombing. In the last five years, the ER Team has raised more than $1.9 million to advance the hospital’s emergency preparedness and disaster medicine efforts.
Additional 2019 Entries
Thanks to John Hancock’s support, Mass General has received 20 additional entries for the 2019 Boston Marathon®. Runners wearing them will raise funds to benefit the Home Base program. This Mass General-Boston Red Sox Foundation program helps veterans, active service members and their families deal with the invisible wounds of war.
Additionally, through the Run for MGH Team, runners who acquired their own entries for the Boston Marathon® raise funds for various Mass General programs that are near and dear to their hearts. Programs being represented by 2019 runners include: Caring for a Cure, Cystic Fibrosis, Down Syndrome, the Lurie Center for Autism and the Mootha Lab.
To learn more about the Mass General Boston Marathon® Program, please visit our website.