Massachusetts General Hospital’s Frontotemporal Disorders Unit 7th Annual Education Day, From Care to Cure, will take place on Friday, April 6, 2018 at the Westin Waltham Boston Hotel. This event will bring together over one hundred and twenty patients, caregivers, clinicians, staff members, and community partners for a day of education and community building.
Frontotemporal Disorders (FTD) are a group of progressive neurological disorders with no known treatment to slow or stop their progression. This cruel disease robs patients of core human characteristics, their ability to work, communicate, and live their lives fully. FTD has a terminal prognosis. The scientific community is making progress with new pathological discoveries. Here at MGH, we are at the cutting edge of those discoveries, but there is more to be done. We have worked closely to engage families in research and community partners in efforts to provide the highest quality of care.
From Care to Cure draws together participants from across New England to learn about the latest scientific discoveries; to connect with patients, caregivers and community resources; and to engage in workshops to navigate life with FTD.
9:00 – 10:00 Community Resource Fair
10:00 – 12:00 An Overview of Frontotemporal Disorders: Presentations from MGH FTD Unit clinicians and staff, led by director Brad Dickerson, MD
12:00 – 1:15 Luncheon and Frontotemporal Disorders Unit Caregiver Education Keynote Address: Helen Kales, MD, Director, Program for Positive Aging, Michigan Medicine, University of Michigan
1:30 – 3:00 Afternoon Workshop Selection: Navigating Life with a Frontotemporal Disorder (workshop selection opportunities will be sent to registrants prior to Education Day)
3:00 FTD Education Day Closes
Sponsorships are available, contact Katie Brandt at Katherine.Brandt@mgh.harvard.edu with any questions for sponsorship or attendance.
This initiative is a registered Mass General Community Fundraiser. Mass General does not enter into direct sponsorship of this effort, provide any financial support, or assume any liability for its conduct. If you have any questions, please contact the Mass General Community Fundraising Team.