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When

Date:
April 5
Time:
9:00 am - 3:00 pm
Cost:
Free
Event Category:
Website:
https://because.massgeneral.org/event/from-care-to-cure-ftd-unit-community-event/e221638

Address

Westin Waltham Boston Hotel
70 3rd Avenue
Waltham, MA 02451 United States
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Organizer

Katie Brandt
Phone:
617-643-2323
Email:
Katherine.Brandt@mgh.harvard.edu

Massachusetts General Hospital’s Frontotemporal Disorders Unit 8th From Care to Cure event, will take place on Friday, April 5, 2019 at the Westin Waltham Boston Hotel. This event will bring together over one hundred and twenty patients, caregivers, clinicians, staff members, and community partners for a day of learning, connecting and community building.

Frontotemporal Disorders (FTD) are a group of progressive neurological disorders with no known treatment to slow or stop their progression. This cruel disease robs patients of core human characteristics, their ability to work, communicate, and live their lives fully. FTD has a terminal prognosis. The scientific community is making progress with new pathological discoveries. Here at MGH, we are at the cutting edge of those discoveries, but there is more to be done. We have worked closely to engage families in research and community partners in efforts to provide the highest quality of care.

From Care to Cure draws together attendees from across New England to learn about the latest scientific discoveries; to connect with patients, caregivers and community resources; and to engage in workshops to navigate life with FTD, atypical and young-onset Alzheimer’s Disease and related dementias.

Event Agenda

9:00 – 10:00 Registration & Resource Tables

10:00 – 12:00 Understanding Frontotemporal Disorders
Led by FTD Unit Director, Brad Dickerson, MD and FTD Unit Clinicians and Staff Members

1:30 – 300 Workshops for Managing Life with FTD, Alzheimer’s and Related Disorders

3:00 Close of 2019 From Care to Cure

Sponsorships are available, contact Katie Brandt at Katherine.Brandt@mgh.harvard.edu with any questions for sponsorship or attendance.

This initiative is a registered Mass General Community Fundraiser. Mass General does not enter into direct sponsorship of this effort, provide any financial support, or assume any liability for its conduct. If you have any questions, please contact the Mass General Community Fundraising Team.